According to RadarOnline, Messer told Us Weekly that she suffers from a dangerous sleep disorder known as, narcolepsy, in which she says has hindered her from getting her twin daughters, Ali and Aleeah, to school on time. Later we learn that Messer has since changed that story, after being called out by a follower on Twitter.
Messer quickly responded to the follower with this tweet,
Photo credit:Twitter/MTV
Reportedly another viewer showed their dislike for Messer's past behaviors explaining, "Even if someone was stupid enough to believe she does have narcolepsy, does she really think it would make everything she's done okay?" also adding, "She has still put her kids in danger."As previously reported, On Oct. 7 Messer lost custody of her twin daughters to her ex husband, Corey Simms, after a judge ruled Messer has consistently failed to bring the twins to school on time. According to many reports, Simms now has the twin girls Monday through Friday with Messer having the twins on the weekend.
What's your thoughts? Do you think Leah has a sleeping disorder?
I have narcolepsy as well as Klippel-Feil syndrome, and my two children have narcolepsy as well. If Leah does have narcolepsy, hopefully she will be on a regular schedule of medications and behavior changes that will enable her to care for her children. Please note that even if some of her tests come up negative, it does not mean she does not have the disorder. There are approximately 16% of people with narcolepsy who will have a negative MSLT (commonly called a nap test) and approximately the same amount without narcolepsy will have a false positive on the test. There is also a test of spinal fluid which may or may not confirm the diagnosis. The genetic markers are found in roughly 25% of the population, so again, it is not a definitive marker of narcolepsy. Like her daughter's testing which excluded other problems, it is not always a quick and easy path to diagnosis. If Leah is found to have narcolepsy, I hope that she will use this opportunity to educate others. It is good that she went through rehab, as PWN often are proportionally more affected by the use of drugs than those without the disease. It is possible to raise healthy, happy children, and to take care of a special needs child if a mother has narcolepsy. I know, I did it.
ReplyDeleteThere are several symptoms of narcolepsy, and there are many in the community who do not receive an appropriate diagnosis because of doctors who are uneducated about the disorder, and because they do not follow appropriate protocols when conducting the testing. In addition, other sleep problems can also exist with narcolepsy. It is common to refuse to treat narcolepsy if the patient has even very mild sleep apnea, below the normal therapeutic levels for a cpap machine, delaying the diagnosis and appropriate treatment. The classic symptoms include fragmented sleep, excessive daytime sleepiness with a tendency to fall asleep when others would not, sleep paralysis where you cannot move upon waking up or falling asleep, hypnagognic/hypnapopnic hallucinations, which are scary dreams when still awake but falling asleep or waking up, cataplexy, which is a sudden loss of muscle control on part or all of the body, and automatic behaviors where people perform routine actions while asleep. A neurologist familar with narcolepsy will often make a positive diagnosis even in the absense of a positive MSLT test. An MSLT consists of being wired up to many wires, and after an all night sleep lab, the patient is periodically woken up for a set period, then told to take a nap for 15 minutes, then repeated several times during the day. If the patient enters a dream state (REM sleep) quickly in multiple naps, then the diagnosis of narcolepsy is made. However as I stated above, many patients will not "pass" the MSLT even with narcolepsy. I am one of those. In 7 MSLTs, I have had one with a positive MSLT result, because chronic pain and other disorders keep me from falling asleep on demand, and wake me before I get to the nap state. So please, give her the benefit of the doubt. It can take months or years to get to a diagnosis
ReplyDeleteVery informative and nice too see someone advising people to keep an open minds with everything else gone on I can't see her plucking this one out of mid air without at least some indercation that this is a problem. People are so quick to find fault in people and talk about it rather than help people with human flaws just like everyone else. Nobody is perfect.
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